Update...

So I had typed the previous post up, wanted to add more but of course had dr.'s etc... come in and it was ICU so busy, I wanted to share more of my feelings of what happened, but that would have been a long post.

As for today they got more x-rays, if the air in my lungs is pretty much gone they will do the procedure this afternoon, if not we have to wait because it will do no good! But at the same time we can't wait forever because my body isn't responding to chest tubes like it should, the dr. said he's had patients with chest tubes for weeks! I do have a tear in my pleural wall which will just continue to do somsething, produce fluid etc... everytime I cough and move. So that's not good.

I also cough alot because that is part of Cystic Fibrosis! we produce more and thicker mucus (which is why the little chest tube keeps getting plugged) and therefore our cough is deeper and junkier, some people can identify us because of our cough!!!!!!!! So that doesn't help all this or the pain issue. Aaahh life in the hospital.

My husband has stayed with me since wednesday (although he did go home this morning to change etc... he didn't have any clothes with him when he came up since he came straight from school since it was an emergency!) this is the longest we've left the dogs, so they have been in a pen for two days! we do have a friend going over and taking them out two or three times a day and feeding them but they are so not use to being in the pen! they are spoiled little girls who are free all day, I know they are just dogs but I feel bad nonetheless, hopefully I will be home soon and things will be more normal.

I hope to post tomorrow and say everything is good, the procedure went well and not as painful as expceted (they say it's very painful) I just really pray and ask anyone to pray for me that this procedure will work the way it is suppose to and that I will not suffer any side effects or have anything go wrong with the procedure.

Take a deep breath for me!:)

Pneumothorax #3 #4 #5 #6

This was typed up Thursday June 20, 2008
Yes you read that right I have had four episodes of Pneumothorax since Tuesday evening to Wednesday morning, my chest tube kept getting clogged and I would then have air fill my lungs and it would get really hard to breathe, I know I am making it sound much less serious than it was, the very first one (or #3 in this case) was so horrible they almost had to intubate me, luckily one of the dr.'s came in and did a special thing to the tube and all the air came out. It is amazing how that feels, one or two seconds earlier and you can't breathe, then you really do feel like your lung is expanding and you can breath again!

So after this happening a couple times that night they sent me to ICU then the next morning it started happening again, they decided to put in a bigger chest tube (can we say PAIN!!! bigger may mean better but it also means more pain) they were planning on taking me somewhere when within ten mins. I was calling them again telling them I couldn't breath, then they set stuff up in my room and in twenty mins. the tube was in and they were taping up!

It is more painful but a lot better than not breathing! They want to do a cat scan but I can't lay flat so we'll see what they do, also I don't know when they will 'glue' my lung now, the less air that is in there the more effective it will be.

So I am still in ICU but feeling good enough to blog! Well that's all for now it's nap time!

Pneumotherax #2

That's right, I couldn't catch my breath on friday, called MH at school and had him come home and within 15mins. we were on our way to the ER!!!!!!! Once again I had air in my lungs making it really hard to breathe! Oh it is not fun! So transferred me to MICU and put in a chest tube (at that point you replace not being able to breath because of pressure to not being able to breathe because of pain!!) it's funny because you can totallay feel the 'air' escaping! the pressure just releases and I can breath again! Then the numbing medicine wears off and it feels like I have a sword in my side! a day or so later it just feels like a butter knife now.

I thought I might get out on Sunday, then maybe Monday, I'm now maybe hoping thursday! They are going to put 'glue' in there to 'glue' the lining of my lungs to the lining of the chest wall, well I had some air in so they waited another day and then today right before they got an x-ray and guess what? I have more air in my lungs! Also the chest tube has come out a little and for sanitary reasons etc. they can't just push it back in so I get a new one! Yipee for me! Then after waiting all day right before they do it he asks me if I have had anything to eat! Now I have to wait until tomorrow morning! Then they have to wait and make sure all the air is out of my lungs and then they can do the 'gluing', so I think I will still be here a couple days.

But I was able to get a computer again and it's so nice! I wish I had gotten one over the weekend because it made for a long weekend. Oh well I have one now. So I don't plan on getting out until at least thursday if not later.

My little sweethearts came to visit me today, they are so wonderful, although I think I need my sheets changed before I go to bed! It was worth it, I miss them. They missed me too it was nice to see how much they love and miss me.

More to come, now I can catch up on some blogs!!!!! wish I could do pictures!

CF Story...My story...

Since watching this I have decided to write 'My Story' of growing up and living with Cystic Fibrosis, it's not much different than this girls, and please remember that a lung transplant isn't the right choice for every CF person, also even when you receive a lung transplant you still have Cystic Fibrosis your lungs are just normal lungs, but CF affects everything in your body so you will still always be dealing with those issues, plus the new ones brought on by lung transplant (all the immune suppressant and rejection etc.) sorry I just know that if you don't know too much about it that a lung transplant seems like the miracle cure all and it's not. Enjoy the movie:) Eat some popcorn popped from your cell phone from my earlier post! HaHaHa!!!!

Cell Phone Too Strong????

WOW!!!!!! There are a couple of these on You Tube, this is amazing!!!! Maybe there is something to how strong our cell phone is, I mean if it can pop popcorn!!!!!
http://www.youtube.com/watch?v=V94shlqPlSI

Reading....

I was doing so good with posting, it's okay, it's only been three days... I have actually been reading and listening to books on CD lately, I use my Mom's library card to reserve books online because her library system is so much better than mine and so she brought me down like 15 books or talks on CD and 5 books! I plan on doing reviews but just thought I would mention the one I am reading and loving right now:

This is the best book! I love the way it was written and Sister Hinckley is such an amazing woman of faith and a great example of what type of woman we should be, reading it has made me want to be so much better, two things that get pointed out a lot are her faith and how she always lifts people up when they are in her presence. Those are two ways I strive to live my life every day too, and since I fall so short I will be saving quotes from the book to uplift me and keep me going and trying again and again.

This is a MUST READ!!!!

Puggle Trouble 2....

The title of the book describes Texas right now!!!! (I'll review the book in a different post)
She's at it again! Texas has been a little naughty lately, please refer back to this time, this time, and this time for previous Puggle trouble.
WHO ME?
LOOK HOW FAR DOWN THE BITES GO!
WHERE'S THE REST OF IT? THIS IS ALL I FOUND!
THE BOTTOM IS ALSO CHEWED, NO SURPRISE THERE!
THESE PAPERS WERE LAYING FLAT ON THE BOX, HOW DID SHE DO THAT?
I COULDN'T BELIEVE THIS ONE, LOOK AT THE LID! SHE TOTALLY SEPARATED THEM! AND YES THERE WERE TWO PILLS INSIDE, LUCKILY SHE DOESN'T LIKE THEM! I FOUND THEM IN PERFECT CONDITION!
SHE LOVES TO BITE THE BED SKIRT WHEN PLAYING WITH CHUGS...
ALSO ANY BLANKET (OR PILLOW) THAT IS AROUND..

BUT HOW CAN YOU NOT LOVE THIS ADORABLE GIRL? These are when she was a little girl.